What is the experience of partners of men with prostate cancer?
Europa Uomo, the organisation for prostate cancer patients across Europe, has launched an important study examining the experiences of partners of men with prostate cancer. It will measure the burden that the disease imposes on caregivers’ lives and define unmet needs.
The EU-PROPER (Europa Uomo Prostate cancer Partners in Europe Research) study centres around an online survey for spouses, partners and caregivers, asking simple questions about how their partner’s condition has affected them. The survey is available in 17 languages.
All the responses collected will be anonymous, but together they will present a valuable picture of the issues being faced by those close to men with prostate cancer – and provide an agenda for action.
Europa Uomo Chairman Guenther Carl says that the study builds on the knowledge gained from previous Europa Uomo studies about patients’ quality of life after treatment (the EUPROMS studies).
“Our EUPROMS surveys have gone some way to identify the burden of prostate cancer on the daily lives of affected men,” he says. “But we also know from our own experience that the effect on partners and caregivers can be considerable. It’s important that we know more about that on a European level. If we can find out what would really help partners, it could have a significant impact on the type of support provided after diagnosis.”
Please participate in the study or publicise it.
Go to europa-uomo.org/eu-proper for more details
Go to euproper.org to complete the survey